1. Advice
  2. Benefits and money

Benefits and money

Your young peoples benefits entitlement is likely to change when they live independently. It is worth exploring what additional benefits they might be entitled to and how much this might be – particularly around housing benefit. This will allow you to understand their budget going forward.

Families said:

People enjoying a silent disco in their house
"I think the biggest stress of all has been sorting the benefits which has been a nightmare of inconsistencies and confusions and continues to be so!"

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Sorting Housing benefit was unnecessarily difficult; there was a real nervousness about parents being directors of the CIC collecting the rent. It caused a lot of confusion and meant we had to talk to people several times – its wasn’t straight forward.
We are involved with a housing association who work with the same values as us, they’ve managed everything around housing benefit for us which has made that much easier. The housing benefit covers more of the costs than we were expecting. It contributes to the costs of living but there are elements included in the housing benefit because it’s a place of work covering the communal areas. Costs around lift servicing, hoist servicing, boiler, fire safety for example are included. Working with a housing association has added a formal layer around management that means our housing and care operate separately.

Resources

My Safe Future

Supports disabled people and their families to plan for their financial future

Mencap

have several factsheets, a phoneline and hold workshops on trusts and wills.

Dosh

can provide financial advocacy and support.

Disability Rights UK

have a benefits calculator to help you find out what benefits you are entitled to